Thursday was very frustrating for me, Wayman & Sharon (Mark's Mom & Dad) and I waited all day until 10:30 PM before they cancelled his surgery. They won't downsize his trachea tube ,or remove on of his chest tubes until after the surgery. I know that it's going to be OK. I just want him to be on the fast track to recovery. I guess I'm just a little worn out. Saturday, I finally got them to remove the cervical collar. He was pretty sleepy in the morning, Matt got to visit his daddy. Scott his brother stayed with him in the afternoon while I went home to nap. (I guess I really needed it!!) It's very hard to be patient and be proactive when it comes to dealing with doctors and getting the answers that we need. Mark can finally have ice chips to quench his thirst. He wants to pull off the tape that is holding all the tubes and lines to his body. Me telling him no, did not help. Then he got angry at me. This upset me. We covered his trachea opening for a second so he could talk and the word he spoke was HELP. He still is taking Oxecodone and that is pretty strong stuff, he has built up some tolerance to it obviously because he is so much more alert than when he first started taking it. I guess what Mark needs is something that will relax him without knocking him out, as a matter of fact, I do too!!!!
I know that your prayers are giving me strenght to continue to do what I can for Mark.
I went to look a facility for rehabilitation today and it was just was not what I expected. I will continue to look this next week.
I'm so blessed having all of you checking up on us, taking care of us.
Thank You.....from my heart. God Bless, each and every one of us. Betty
Maxwell & his Mom@Hospital
Love is a Pleasant Thing
My FAVORITE Grandson
Maxwell, Happy as Usual
Tiff & Maxwell
Tiff and My Little Sunshine
Brea & Maxwell
Another Special Part of my Life
Great Grandmother & Maxwell
Love is a great thing
Another Special One
Max with his Grandpa & Grandma
The ONE to blame for this
He is SPECIAL, too
3 comments:
Hi family,
Thank you all for taking time to post the messages. Megan, school is important -- we will all understand that it is much more important to spend what little spare time you have available with your Dad instead of posting a blog. Betty, my admiration goes out to you for hanging in there through all of this, dealing with doctors and nurses, making all the medical decisions in addition to just the everyday pressures of life have been overwhelming I know. You have done a fantastic job. We know Mark is so miserable and feels so helpless that anger and frustration are his only outlets and unfortunately you are the one there to "take the flak". Being a Bradley not able to talk must be pure torture! Add on being bedridden, all the tubes, needles, etc. and you have a man who wants to let out a loud roar of frustration and with good reason. He is just so miserable he has no concept of the pressures his family have been under through all of this. Once he is better, he'll get back to his old loving self. Not sure what I can say to help, except to say that if he gets angry or frustrated with you not to take it personally, which of course is hard. We all realize what a wonderful job y'all have done through all of this and once Mark is better, he will too. Please let me know if there is anything I can do to help.
Love, Janet (Mark's cousin)
Mulberry Canyon/Abilene area
Believe it or not this is all progress, he is becoming more aware of what he can't do and I'm sure feeling the frustration of not being able to do ANYTHING is very tough. Betty I know this is very hard for you, you are so glad he's alive and awake but then he seems to be irritated with you, its because he is closest to you he can express his real anxieties, frustrations and irritabilities. (He knows you still love him) He loves you and its hard for him to see you tired and frustrated, he knows that you are there for him. I think it was great for his brother to go and stay with him while you really rested. His surgery it will happen in Gods time, he postponed it for a reason we are unaware of, so try to continue to be patient, you have done a great job, and Mark loves you and appreciates all you are doing for him. He's going to have some poor me, why me, this isn't fair, ya'll would be better off if I wasn't here days, its all normal and he doesn't hate anyone he'll just be normal its how we respond to these things. But the good thing about all this is we can turn to God for comfort, peace, strength and wisdom, He is there to hear us complain, cry, question, but most importantly to REJOICE! We are rejoicing in Mark's awakening but along with that comes, Marks being aware of his pain and helplessness.
This is really hard. Physical therapy is going to be very hard and there will be a lot of ups and downs there also. We are still praying for patience and strength for you and the family and of course Mark. Just be comforted in the fact that God is always there. If there is anything we can do to help please let us know. Love and prayers. Sallie
Hi everyone,
Bummer about not getting to have the surgery yet. I know that it is very frustating. I don't know if there is a word in the English language to describe the fustrations and pressures all of you are under. Just hang in there because there is light at the end of the tunnel. As with myself many others check the blog daily for the lastest on Mark. Thanks for taking the time to write in the blog for those of us who can't be there physically but are there in heart and soul. Just remember that Mark is in a lot of pain and very uncomfortable so don't take what he does or says personally. Just be thankful that he is even still with us. He was hard headed as a kid to!!!! Even though he is a grow man now I still see him as a little kid going on vacations with us to Colorado and doing other things. I am well aware of how ANUARY he can be. He grew up to be a great man, father and person and thats why he is loved so much. Hopefully Mark can have the surgery soon and start on the long road to recovery. If there is anything I can do to help please let me know.
Love to all.
Larry Carver (Mark's Cousin)
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