First week at home......

This first week at home is hard on Mark.....not to mention me. Trying to make the house wheelchair friendly and make it possible for him to reach things in the pantry, icebox and in his room. I have Mark settled into the craft room, with all of his medical supplies close so that I can take care of him. Mark is on continuous I.V. antibiotics that is administered by a little machine and also has the wound vac. machine, these two portable machines are in one bag that we hang on the back of the wheelchair and is a pain in the ...... whenever Mark transfers from the couch to the wheelchair or to the bed he has to have them moved and the tubes get in the way. Just making a sandwich and getting it to the table can be quite a chore. But it is something Mark is trying to adapt to. We get help from Mark's parents during the day and I sleep with my cell phone at night, so that Mark can call me when he needs medication or has a alarm from one of the machines. Being a personal nurse is not something that I feel comfortable with but am glad that I can do for Mark. We are adjusting to the routine of his medications and getting him to do exercises. We are starting to have follow up visits with the doctors also all while I am continuing to work. Mark biggest pleasure is getting out to one of Matt's soccer practices or game and phone calls from people. Thank you all for all the prayers and continued support and blessings. Betty